Information: To share or not to share – The Independent Information Governance Oversight Panel’s report to the Secretary of State for Health

Department of Health, January 2015

This is the first annual report of the Independent Information Governance Oversight Panel, chaired by Dame Fiona Caldicott and set up by the Secretary of State for Health in November 2013.

It looks at whether health and social care organisations are sharing information wisely and preventing improper disclosure of personal data. It shows evidence of pockets of exemplary practice but the overall picture is of a need for improvement.

The IIGOP report concludes that a basic condition for building public trust is a commitment to more transparency about how data is collected, stored and used. Individuals must also be able to opt out of data sharing arrangements and be confident that their wishes are being respected consistently across the system.

Click here to download the full report.