The ‘So what, what next?’ project: supporting people with a learning disability, autism or both to use their skills and interests to play a part in the community

Local Government Association, August 2018

The So What, What Next? project was designed by the Transforming Care empowerment steering group to look at ways of supporting people with a learning disability or autism who have recently been discharged from hospital to explore their skills and passions and to find ways to contribute these to their local communities. The focus was on supporting people to use their strengths, become active citizens and to grow their independence. You can read the project report here, including ‘top tips’ for professionals and supporters.

Click here to view the report.

Advertisements

A Health Needs Assessment for Children and Adults with Neurodevelopmental Conditions in Liverpool

Liverpool John Moores University Public Health Institute, August 2018

A rapid health needs assessment for children and adults with neurodevelopmental conditions including attention deficit hyperactivity disorder (ADHD) and autistic spectrum disorder (ASD). This report includes a review of the literature which details: risk factors, prevalence estimates and a summary of the evidence on relevant interventions. The report also includes aggregated data on local service use and an audit of the support services available in Liverpool through brief semi-structured interviews with service providers. Conclusions and recommendations for future service development are also provided.

Click here to view the full report.

Think Autism strategy: governance refresh

Department of Health and Social Care, May 2018

The 19 objectives of the Think Autism strategy have been grouped under the following headings:

  • Measuring, understanding and reporting needs of autistic people
  • Workforce development
  • Health, care and wellbeing
  • Specific support
  • Participation in local community

This refresh outlines the implementation activities required to deliver its intended outcomes.

Click here to view the full report.

A trade in people: the inpatient healthcare economy for people with learning disabilities and/or autism spectrum disorder

Centre for Disability Research, University of Lancaster (CeDR), June 2017

This report finds that around half of inpatient services for people with learning disabilities or autism are being run by the independent sector rather than the NHS. Over a quarter of a billion pounds of public money every year is being paid to independent sector companies to run these services.  The report calls for greater scrutiny of these independently provided services to ensure they are providing a high quality of care.

Click here to view this report.

These are our children: a review by Dame Christine Lenehan

Department of Health, January 2017

Dame Christine Lenehan was asked by the Department of Health to take a strategic overview and recommend what practical action can be taken to co-ordinate care, support and treatment for children and young people with complex needs (and behaviour that challenges) involving mental health problems and learning disabilities and/or autism.

This report makes 11 recommendations for government departments and partners at a national level on how to improve the system.

Click here to view the report.

Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial

The Lancet, October 2016

This is a randomised controlled trial of a parent-mediated social communication intervention for children aged 2–4 years with core autism to investigate whether early intervention can improve long-term autism symptom outcomes.  The results are the first to show long-term symptom reduction after a randomised controlled trial of early intervention in autism spectrum disorder. They support the clinical value of the PACT intervention and have implications for developmental theory.

Click here to view the full text paper.

A spectrum of obstacles: an inquiry into access to healthcare for autistic people

Westminster Commission on Autism, July 2016

Following a seven-month inquiry and a consultation of over 900 people, the Westminster Commission on Autism launches its inquiry report and calls for improved access to healthcare for all autistic people. It calls for greater training of health professionals to increase awareness of the health care needs of autistic people; the implementation of annual health checks for autistic people; and also that CQC should establish autism-specific inspection questions into their inspection framework.

Click here to read the full report.