A trade in people: the inpatient healthcare economy for people with learning disabilities and/or autism spectrum disorder

Centre for Disability Research, University of Lancaster (CeDR), June 2017

This report finds that around half of inpatient services for people with learning disabilities or autism are being run by the independent sector rather than the NHS. Over a quarter of a billion pounds of public money every year is being paid to independent sector companies to run these services.  The report calls for greater scrutiny of these independently provided services to ensure they are providing a high quality of care.

Click here to view this report.

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These are our children: a review by Dame Christine Lenehan

Department of Health, January 2017

Dame Christine Lenehan was asked by the Department of Health to take a strategic overview and recommend what practical action can be taken to co-ordinate care, support and treatment for children and young people with complex needs (and behaviour that challenges) involving mental health problems and learning disabilities and/or autism.

This report makes 11 recommendations for government departments and partners at a national level on how to improve the system.

Click here to view the report.

Parent-mediated social communication therapy for young children with autism (PACT): long-term follow-up of a randomised controlled trial

The Lancet, October 2016

This is a randomised controlled trial of a parent-mediated social communication intervention for children aged 2–4 years with core autism to investigate whether early intervention can improve long-term autism symptom outcomes.  The results are the first to show long-term symptom reduction after a randomised controlled trial of early intervention in autism spectrum disorder. They support the clinical value of the PACT intervention and have implications for developmental theory.

Click here to view the full text paper.

A spectrum of obstacles: an inquiry into access to healthcare for autistic people

Westminster Commission on Autism, July 2016

Following a seven-month inquiry and a consultation of over 900 people, the Westminster Commission on Autism launches its inquiry report and calls for improved access to healthcare for all autistic people. It calls for greater training of health professionals to increase awareness of the health care needs of autistic people; the implementation of annual health checks for autistic people; and also that CQC should establish autism-specific inspection questions into their inspection framework.

Click here to read the full report.

Time for Change – the Challenge Ahead

ACEVO, February 2016

May 2016 will mark the 5th anniversary of the Panorama programme which exposed abuse and neglect at Winterbourne View Hospital, a private assessment and treatment unit (ATU) for people with learning disabilities and/or autism. This report looks at the actions taken so far and calling on partners, including CQC, to demonstrate how they are helping to reduce the reliance on hospital-based settings for people with learning disabilities.

 

Click here to read the full report.

Government response to No voice unheard, no right ignored

Department of Health, November 2015

This response sets out proposals to strengthen the rights of people with learning disabilities, autism or mental health conditions and their families. Significantly the government has announced people with learning disabilities, autism or mental health conditions who are at risk of hospital admission will get a named social worker to challenge decisions about their care.

Click here to read the full report.