Far less than they deserve: children with learning disabilities or autism living in mental health hospitals

Children’s Commissioner, May 2019

This report finds that too many children are being admitted to secure hospitals unnecessarily – in some cases are spending months and years of their childhood in institutions rather than being treated in their communities. It warns that the current system of support for those with learning disabilities or autism is letting down some of the most vulnerable children in the country.

Click here to view the full report.

Ask Listen Do: Making conversations count in health, social care and education: Tips for health, social care and education organisations and practitioners

NHS England, November 2018

This Ask Listen Do resource shares tips for health, social care and education organisations and practitioners with the aim of making feedback, concerns and complaints easier for people with a learning disability, autistic people, families and carers.

Click here to view the full report.

The ‘So what, what next?’ project: supporting people with a learning disability, autism or both to use their skills and interests to play a part in the community

Local Government Association, August 2018

The So What, What Next? project was designed by the Transforming Care empowerment steering group to look at ways of supporting people with a learning disability or autism who have recently been discharged from hospital to explore their skills and passions and to find ways to contribute these to their local communities. The focus was on supporting people to use their strengths, become active citizens and to grow their independence. You can read the project report here, including ‘top tips’ for professionals and supporters.

Click here to view the report.

A Health Needs Assessment for Children and Adults with Neurodevelopmental Conditions in Liverpool

Liverpool John Moores University Public Health Institute, August 2018

A rapid health needs assessment for children and adults with neurodevelopmental conditions including attention deficit hyperactivity disorder (ADHD) and autistic spectrum disorder (ASD). This report includes a review of the literature which details: risk factors, prevalence estimates and a summary of the evidence on relevant interventions. The report also includes aggregated data on local service use and an audit of the support services available in Liverpool through brief semi-structured interviews with service providers. Conclusions and recommendations for future service development are also provided.

Click here to view the full report.

Think Autism strategy: governance refresh

Department of Health and Social Care, May 2018

The 19 objectives of the Think Autism strategy have been grouped under the following headings:

  • Measuring, understanding and reporting needs of autistic people
  • Workforce development
  • Health, care and wellbeing
  • Specific support
  • Participation in local community

This refresh outlines the implementation activities required to deliver its intended outcomes.

Click here to view the full report.

A trade in people: the inpatient healthcare economy for people with learning disabilities and/or autism spectrum disorder

Centre for Disability Research, University of Lancaster (CeDR), June 2017

This report finds that around half of inpatient services for people with learning disabilities or autism are being run by the independent sector rather than the NHS. Over a quarter of a billion pounds of public money every year is being paid to independent sector companies to run these services.  The report calls for greater scrutiny of these independently provided services to ensure they are providing a high quality of care.

Click here to view this report.