Caring alone: why Black, Asian and Minority Ethnic young carers continue to struggle to access support

Barnardo’s, April 2019

This report finds that young Black, Asian and Minority Ethnic children who care for ill or disabled relatives are more likely than other young carers to be isolated from support services.  The concept of a young carer is unfamiliar to many BAME communities as helping your family and extended family is often expected and there is stigma within many BAME communities in acknowledging mental health and disability issues and in seeking support.  The report makes recommendations including ensuring that allpatients who don’t speak English should have access to a translator instead of relying on children to translate for their family.  The NHS should work with communities to tackle stigma around within BAME communities to reduce the stigma of mental illness, special needs and disability and improve access to services.

Click here to view the full report.

Juggling work and unpaid care: a growing issue

Carers UK, February 2019

The report finds that 2.6 million people in the UK have quit their job to care for a loved one who is older, disabled or seriously ill, with nearly half a million (468,000) leaving their job in the last two years alone.  The report findings also show that more people are caring than previously thought, with almost 5 million workers now juggling their paid job with caring – a dramatic rise compared with Census 2011 figures of 3 million.  The report recommends that employers support staff with caring responsibilities to stay in the workforce through flexible working arrangements and increased Carers’ leave.

Click here to view the full report.


Involving Patients and Carers in Quality Improvement Projects: A Practical Guide

Central and North West London NHS Foundation Trust, January 2019

This guide explains how to involve patients and carers in Quality Improvement (QI) projects. The toolkit covers topics such as:

  • How to pay service users and carers
  • How to recruit service users and carers
  • How to run effective and inclusive meetings
  • How to induct service users and carers into a QI project meeting

Click here to view the guide.

Ask Listen Do: Making conversations count in health, social care and education: Tips for health, social care and education organisations and practitioners

NHS England, November 2018

This Ask Listen Do resource shares tips for health, social care and education organisations and practitioners with the aim of making feedback, concerns and complaints easier for people with a learning disability, autistic people, families and carers.

Click here to view the full report.

Carers action plan 2018 to 2020: supporting carers today

Department of Health and Social Care, September 2018

The plan sets out the cross-government programme of work to support carers over the next 2 years.  It is structured around the following themes:

  • services and systems that work for carers
  • employment and financial wellbeing
  • supporting young carers
  • recognising and supporting carers in the wider community and society
  • building research and evidence to improve outcomes for carers

Click here to view the full report.

Caring for carers: The lives of family carers in the UK

The Social Market Foundation, July 2018

This report highlights the important role that family carers fulfil but also the negative  impact it can have on these individuals. Family care is a vital component of the current social care system; without it, provision would either be unacceptably limited or unacceptably expensive. We need a sensible discussion of the policies required to support and assist family carers.  Given the negative impact caring can have on a carer’s employment, there is a central role for employers to play in supporting workers combining employment with caring responsibilities.  This report identifies a care navigator can seriously improve the lives of those providing family care and particularly help those without family.

Click here to view the full report.