Involving Patients and Carers in Quality Improvement Projects: A Practical Guide

Central and North West London NHS Foundation Trust, January 2019

This guide explains how to involve patients and carers in Quality Improvement (QI) projects. The toolkit covers topics such as:

  • How to pay service users and carers
  • How to recruit service users and carers
  • How to run effective and inclusive meetings
  • How to induct service users and carers into a QI project meeting

Click here to view the guide.

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Ask Listen Do: Making conversations count in health, social care and education: Tips for health, social care and education organisations and practitioners

NHS England, November 2018

This Ask Listen Do resource shares tips for health, social care and education organisations and practitioners with the aim of making feedback, concerns and complaints easier for people with a learning disability, autistic people, families and carers.

Click here to view the full report.

Carers action plan 2018 to 2020: supporting carers today

Department of Health and Social Care, September 2018

The plan sets out the cross-government programme of work to support carers over the next 2 years.  It is structured around the following themes:

  • services and systems that work for carers
  • employment and financial wellbeing
  • supporting young carers
  • recognising and supporting carers in the wider community and society
  • building research and evidence to improve outcomes for carers

Click here to view the full report.

Caring for carers: The lives of family carers in the UK

The Social Market Foundation, July 2018

This report highlights the important role that family carers fulfil but also the negative  impact it can have on these individuals. Family care is a vital component of the current social care system; without it, provision would either be unacceptably limited or unacceptably expensive. We need a sensible discussion of the policies required to support and assist family carers.  Given the negative impact caring can have on a carer’s employment, there is a central role for employers to play in supporting workers combining employment with caring responsibilities.  This report identifies a care navigator can seriously improve the lives of those providing family care and particularly help those without family.

Click here to view the full report.

Voices from the social care crisis :An opportunity to end a broken system, once and for all –

The Care and Support Alliance, May 2018

Care and Support Alliance report on how the social care crisis is affecting the day to day lives of older people, working aged disabled people and unpaid carers across the country.  It identifies that currently at least 1.2 million older people and disabled people do not receive the care they require, a number which has almost doubled since 2010.  An estimated £6.3bn will have been taken out of adult social care in real terms since 2010 and the cuts to budgets between 2010 and 2017 now total 49%.

Calls on the Government to develop  a social care system creates independence and that ensures recipients not only get the basics, but also have access to the care and support they need to lead fulfilling and healthy lives.  It should be preventative, high quality and deliver person-centered care and support.  It should not rely on the NHS having to save the day when there’s no other support on offer.

Click here to view the full report.

National Minimum Wage: sleep-in care: (Bulletin Number CBP 8243)

House of Commons Library, March 2018

In April 2017 the Employment Appeal Tribunal handed down judgment in Royal Mencap Society v Tomlinson-Blake, providing further guidance on whether employees who undertake sleep-in duties are entitled the National Minimum Wage (NMW) for the time during which they are sleeping. The Tribunal held that, in some cases, carers who are required to be present throughout the night will be entitled to the NMW whether awake or asleep. While this proposition had been established by case law prior to the Mencap case, government guidance had not explained this clearly.

Social care providers have expressed concerns about their ability to meet the requirement to pay carers the NMW during sleep-in shifts. Moreover, many such providers may be exposed to claims for backdated pay.  To obtain backdated wages if underpaid, an employee could take a claim to the employment tribunal or the country court. In addition, the State enforces the NMW. If an employer has breached NMW law, HMRC may take enforcement action.

Following the Mencap decision and the realisation that government guidance had been “potentially misleading”, the Government has set up the Social Care Compliance Scheme and temporarily modified its policy on enforcing the NMW in the social care sector.

Click here to view the full report.