Honoring the voices of bereaved caregivers: a Metasummary of qualitative research

BMC Palliative Care, September 2017

Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had cared for a person requiring palliative care, a comprehensive qualitative understanding of the impact of caregiving on bereavement has not been articulated. The purpose of this study was to conduct a qualitative metasummary to explore the experiences of bereaved family caregivers of people who received palliative care services, regardless of their underlying disease.

Click here to view the full text paper.

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Effect of specialist palliative care services on quality of life in adults with advanced incurable illness in hospital, hospice, or community settings: systematic review and meta-analysis

BMJ 2017;357:j2925

This systematic review aims to assess the effect of specialist palliative care on quality of life and additional outcomes relevant to patients in those with advanced illness.  The review concludes that specialist palliative care was associated with a small effect on QoL and might have most pronounced effects for patients with cancer who received such care early. It could be most effective if it is provided early and if it identifies though screening those patients with unmet needs.

Click here to view the full text paper.

End of life care core skills education and training framework

Skills for Health, March 2017

This framework, developed in partnership with Skills for Care and Health Education England, promotes greater collaboration between organisations in the health and care sectors and in the community. The framework sets out standards for staff education and training and classifies key skills and knowledge into three tiers, ranging from general end of life care awareness to the in-depth knowledge needed to care for and support an individual approaching the end of their life, and their family. A accompanying training pack has been developed to increase awareness and understanding of the importance of working together to support people at the end of their lives.

Click here to view the framework.

Click here to view the Training Pack.

Commissioning care for people with dementia at the end of life: a mixed-methods study

BMJ Open, December 2016

This study aims to understand how end-of-life (EoL) care for people with dementia is currently commissioned (ie, contracted) and organised, with a view to informing the development of commissioning guidance for good-quality community-based EoL care in dementia.

Click here to access the full text study.

Faith at end of life: public health approach resource for professionals

Public Health England, January 2016

This resource aims to help frontline professionals and providers working in community settings and commissioners maintain a holistic approach to the people dying, caring or bereaved.

It provides information to help ensure that commissioning and delivery of services and practice takes account of spiritual needs of the largest 6 faith groups in England and remains appropriate to the community setting in which they work.

Click here for further information and to download the resource.

Improvements to care in the last days and hours of life

Department of Health, August 2015

This report shows the progress organisations have made on specific commitments in the One Chance to Get it Right report, which set out actions to improve care in the last days and hours of life.

The update sets out progress made on:

•the new Care Quality Commission inspection regime for end of life care
•new NICE guidance
•actions to improve education, training and research
•professional regulation
•the implementation of the priorities for care

Click here for further information and to download the report.