Institute for Public Policy Research, May 2018
Every year in England and Wales over 500,000 people die. For three-quarters of these people, death does not come suddenly. Instead, dying is a process that may take days, weeks or even years, involving a progressive decline in functioning and frequent interactions with health professionals. During this time, many receive some form of end of life care, designed to ease any pain or distress caused by their symptoms, and to maximise their quality of life until the moment of their death. The value of this care cannot be understated, not just for those people who are reaching the end of their lives but also for their families and carers. This report considers the:
- Cost of Care
- Quality of Care
- Patient and Carer Experience of Care
Click here to view the full report.
BMC Palliative Care, September 2017
Family caregiving in the context of advanced disease in particular, can be physically and emotionally taxing. Caregivers can subsequently face bereavement exhausted with few supports, limited resources and a significant proportion will develop negative psychological and social outcomes. Although some research has attended to the bereavement experiences of family caregivers who had cared for a person requiring palliative care, a comprehensive qualitative understanding of the impact of caregiving on bereavement has not been articulated. The purpose of this study was to conduct a qualitative metasummary to explore the experiences of bereaved family caregivers of people who received palliative care services, regardless of their underlying disease.
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This systematic review aims to assess the effect of specialist palliative care on quality of life and additional outcomes relevant to patients in those with advanced illness. The review concludes that specialist palliative care was associated with a small effect on QoL and might have most pronounced effects for patients with cancer who received such care early. It could be most effective if it is provided early and if it identifies though screening those patients with unmet needs.
Click here to view the full text paper.
Skills for Health, March 2017
This framework, developed in partnership with Skills for Care and Health Education England, promotes greater collaboration between organisations in the health and care sectors and in the community. The framework sets out standards for staff education and training and classifies key skills and knowledge into three tiers, ranging from general end of life care awareness to the in-depth knowledge needed to care for and support an individual approaching the end of their life, and their family. A accompanying training pack has been developed to increase awareness and understanding of the importance of working together to support people at the end of their lives.
Click here to view the framework.
Click here to view the Training Pack.
BMJ Open, December 2016
This study aims to understand how end-of-life (EoL) care for people with dementia is currently commissioned (ie, contracted) and organised, with a view to informing the development of commissioning guidance for good-quality community-based EoL care in dementia.
Click here to access the full text study.
Public Health England, November 2016
This report is for commissioners of end of life care services, to support new ways of commissioning through using public health approaches to build compassionate communities.
Click here to access this report.
Public Health England, January 2016
This resource aims to help frontline professionals and providers working in community settings and commissioners maintain a holistic approach to the people dying, caring or bereaved.
It provides information to help ensure that commissioning and delivery of services and practice takes account of spiritual needs of the largest 6 faith groups in England and remains appropriate to the community setting in which they work.
Click here for further information and to download the resource.